
IN THE MATTER OF THE MENTAL CAPACITY ACT 2005
IN THE MATTER OF MN
Royal Courts of Justice
Strand, London, WC2A 2LL
Before :
MR JUSTICE PEEL
Between :
ST GEORGE’S UNIVERSITY HOSPITALS NHS FOUNDATION TRUST | Applicant |
- and - | |
MN (by his litigation friend, the Official Solicitor) | Respondent |
Rhys Hadden (instructed byBevan Brittan LLP) for the Applicant
Parishil Patel KC (instructed by the Official Solicitor) for the Respondent
Hearing date: 22 July 2025
Approved Judgment
This judgment was handed down remotely at 10.30am on 28 July 2025 by circulation to the parties or their representatives by e-mail and by release to the National Archives.
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MR JUSTICE PEEL
This judgment was delivered in public but a Transparency Order is in force. The judge has given leave for this version of the judgment to be published on condition that (irrespective of what is contained in the judgment) in any published version of the judgment the anonymity of MN and members of his family must be strictly preserved. All persons, including representatives of the media and legal bloggers, must ensure that this condition is strictly complied with. Failure to do so may be a contempt of court.
Mr Justice Peel :
Introduction
MN is 54 years old. He currently lives in a specialist residential care home in London for people with severe mental health conditions, and is subject to a Standard Authorisation granted pursuant to the DoLS Scheme under Sch.A1 of the Mental Capacity Act 2005.
On 16 July 2025, St George’s University Hospitals NHS Foundation Trust (“the Trust”) applied to the Court of Protection for:
Declarations that MN lacks (a) litigation capacity and (b) capacity to make decisions about investigative examination for possible anal cancer.
Authorisation to carry out under general anaesthetic investigations at hospital for suspected anal cancer, including (a) examination and biopsy of anal lesion, (b) CT scan of the thorax, abdomen and pelvis (which would take 5-10 minutes), (c) MRI scan of the pelvis (which would take 30-60 minutes), and (d) blood tests.
Deprivation of liberty authorisation, to the extent necessary to carry out the above investigations, and which may include restraint. It is anticipated that he would travel under sedation by car from his care home to hospital, accompanied by two familiar carers from the home and two restraint-trained staff.
The Trust’s plan is to carry out these steps in the next 2 to 4 weeks. At the moment, the 7 August is the intended date for all the tests to be undertaken, after which an MDT meeting would take place on 15 August 2025 to evaluate treatment options.
MN’s only known relevant family member is his mother who has no role in MN’s medical care. She does not wish to be involved in the proceedings but would like to be notified of the outcome of any medical investigations.
The parties are the Trust and MN by his litigation friend, the Official Solicitor. The Official Solicitor is supportive of the application.
Evidence
I have before me the witness statement of MN’s treating Colorectal Surgeon, as part of the bundle filed for the hearing, and heard oral evidence from him.
The background.
MN has a long standing history of chronic paranoid schizophrenia dating back some 30 years during which he has been admitted to hospital on at least 10 occasions under the Mental Health Act 1983 or voluntarily, most recently between 2018 and 2021. At times the schizophrenia has been comorbid with alcohol use. He receives anti-psychotic medication, and is able to access the community. His mental health is said to be comparatively stable.
He has had long standing persistent delusional beliefs and auditory hallucinations. These include healthcare professionals attempting to harm him and attributing symptoms to incorrect causes such as insect infestation. He has regularly displayed aggressive behaviour to clinical staff and care workers, including multiple incidents of assault, often prompted when his beliefs are challenged.
In September 2024, he was referred by his GP to the colorectal team at St George’s Hospital with an anal mass which imaging suggested was strongly suspected to be cancerous. He has attended clinics , but has repeatedly declined investigation, and displayed aggressive behaviour to the clinical and healthcare teams. The team consider that the diagnosis needs to be confirmed, to establish if it has spread, and to formulate a plan to treat and manage MN.
The Trust properly acknowledges that the delay in this case is unsatisfactory, although it is in part mitigated by MN’s non-cooperation. Given that he was suspected of having cancer in October 2024 (when he was first seen at hospital after the GP referral), and was assessed as lacking capacity in February 2025. The anal mass has grown and MN is reported to be experiencing increasing amounts of pain. I do not consider that, despite the challenges of the case, this delay can remotely be justified, and in my judgment the Trust should review why it has taken so long to embark on legal proceedings and what lessons can be learned.
MN’s expressed views
MN has demonstrated some understanding that the team believe he has cancer but does not recognise the need for further investigation, and says he does not want it. The use of the word “cancer” makes him distressed and, at times, verbally aggressive. He does not appreciate the risk of non-intervention, saying there is no point in investigative examination. The evidence is that he is unable to retain and weigh the pros and cons of the proposed testing.
MN is aware that there are unwanted symptoms in the anal area, and says they hurt sometimes. He believes they are due to bed bugs. He does not understand the need for a biopsy. He has referred to removal of clitorises, and asked why the doctors would want to castrate him. He has said that the scans would examine his head and he wanted the doctors to read his brain. He has spoken of the team wanting to commit euthanasia and female genital mutilation. He treats clinicians with what one has described as a “torrent of swear words and insults”.
Although in general he has expressed to the clinicians his opposition to testing, he has on occasions indicated to his Independent Mental Capacity Advocate (“IMCA”) a willingness to undergo investigations.
The Official Solicitor’s agent met MN at his home yesterday. At times it was not possible to make out what he was saying, and some of what he said was delusional and nonsensical. He said that he had never “queried” going to hospital to have a general anaesthetic and “I don’t mind doing that”. He nodded when asked about the CT and MRI scans. He reiterated that he does not believe he has cancer. He said that he is a high risk kidnap victim. He said “I don’t want to die at all”.
Capacity
The statutory test in the Mental Capacity Act 2005 (“the Act”) is as follows:
The principles
The following principles apply for the purposes of this Act.
A person must be assumed to have capacity unless it is established that he lacks capacity.
A person is not to be treated as unable to make a decision unless all practicable steps to help him to do so have been taken without success.
A person is not to be treated as unable to make a decision merely because he makes an unwise decision.
2 People who lack capacity
For the purposes of this Act, a person lacks capacity in relation to a matter if at the material time he is unable to make a decision for himself in relation to the matter because of an impairment of, or a disturbance in the functioning of, the mind or brain.
It does not matter whether the impairment or disturbance is permanent or temporary.
A lack of capacity cannot be established merely by reference to—
a person's age or appearance, or
a condition of his, or an aspect of his behaviour, which might lead others to make unjustified assumptions about his capacity.
3 Inability to make decisions
For the purposes of section 2, a person is unable to make a decision for himself if he is unable—
to understand the information relevant to the decision,
to retain that information,
to use or weigh that information as part of the process of making the decision, or
to communicate his decision (whether by talking, using sign language or any other means).
A person is not to be regarded as unable to understand the information relevant to a decision if he is able to understand an explanation of it given to him in a way that is appropriate to his circumstances (using simple language, visual aids or any other means).
The fact that a person is able to retain the information relevant to a decision for a short period only does not prevent him from being regarded as able to make the decision.
The information relevant to a decision includes information about the reasonably foreseeable consequences of—
deciding one way or another, or
failing to make the decision.
There is no dispute that MN lacks both litigation capacity and capacity to make a decision in respect of diagnostic testing. The cause is his paranoid schizophrenia, which amounts to an impairment or disturbance of the mind. He is unable to retain, use and weigh information relevant to legal proceedings, and unable to instruct a lawyer. He is unable to retain, use and weigh the risks and benefits of the proposed investigations. In particular he does not, as a result of his schizophrenia, fully understand the possibility that he may have cancer, and the advantages and disadvantages of further investigation. Having read, in particular, the evidence of MN’s treating clinician and a capacity assessment dated 9 April 2025, I am satisfied that MN lacks the relevant capacity and there is nothing to suggest that his capacity to make decisions is likely to improve.
Best interests
The statutory principles are set out at s4 of the Act.
4 Best interests
In determining for the purposes of this Act what is in a person's best interests, the person making the determination must not make it merely on the basis of—
the person's age or appearance, or
a condition of his, or an aspect of his behaviour, which might lead others to make unjustified assumptions about what might be in his best interests.
The person making the determination must consider all the relevant circumstances and, in particular, take the following steps.
He must consider—
whether it is likely that the person will at some time have capacity in relation to the matter in question, and
if it appears likely that he will, when that is likely to be.
He must, so far as reasonably practicable, permit and encourage the person to participate, or to improve his ability to participate, as fully as possible in any act done for him and any decision affecting him.
Where the determination relates to life-sustaining treatment he must not, in considering whether the treatment is in the best interests of the person concerned, be motivated by a desire to bring about his death.
He must consider, so far as is reasonably ascertainable—
the person's past and present wishes and feelings (and, in particular, any relevant written statement made by him when he had capacity),
the beliefs and values that would be likely to influence his decision if he had capacity, and
the other factors that he would be likely to consider if he were able to do so.
He must take into account, if it is practicable and appropriate to consult them, the views of—
anyone named by the person as someone to be consulted on the matter in question or on matters of that kind,
anyone engaged in caring for the person or interested in his welfare,
any donee of a lasting power of attorney granted by the person, and
any deputy appointed for the person by the court,
as to what would be in the person's best interests and, in particular, as to the matters mentioned in subsection (6).
The duties imposed by subsections (1) to (7) also apply in relation to the exercise of any powers which—
are exercisable under a lasting power of attorney, or
are exercisable by a person under this Act where he reasonably believes that another person lacks capacity.
In the case of an act done, or a decision made, by a person other than the court, there is sufficient compliance with this section if (having complied with the requirements of subsections (1) to (7)) he reasonably believes that what he does or decides is in the best interests of the person concerned.
"Life-sustaining treatment" means treatment which in the view of a person providing health care for the person concerned is necessary to sustain life.
"Relevant circumstances" are those—
of which the person making the determination is aware, and
which it would be reasonable to regard as relevant
The jurisprudence has emphasised the need to construe best interests broadly, most notably in Aintree University Hospital NHS Trust v James [2013] UKSC 67.
“[22] Hence the focus is on whether it is in the patient's best interests to give the treatment rather than whether it is in his best interests to withhold or withdraw it. If the treatment is not in his best interests, the court will not be able to give its consent on his behalf and it will follow that it will be lawful to withhold or withdraw it. Indeed, it will follow that it will not be lawful to give it. It also follows that (provided of course they have acted reasonably and without negligence) the clinical team will not be in breach of any duty toward the patient if they withhold or withdraw it.”
“[39] The most that can be said, therefore, is that in considering the best interests of this particular patient at this particular time, decision-makers must look at his welfare in the widest sense, not just medical but social and psychological; they must consider the nature of the medical treatment in question, what it involves and its prospects of success; they must consider what the outcome of that treatment for the patient is likely to be; they must try and put themselves in the place of the individual patient and ask what his attitude towards the treatment is or would be likely to be; and they must consult others who are looking after him or are interested in his welfare, in particular for their view of what his attitude would be.”
“[45] The purpose of the best interests test is to consider matters from the patient's point of view. That is not to say that his wishes must prevail, any more than those of a fully capable patient must prevail. We cannot always have what we want. Nor will it always be possible to ascertain what an incapable patient's wishes are. Even if it is possible to determine what his views were in the past, they might well have changed in the light of the stresses and strains of his current predicament. In this case, the highest it could be put was, as counsel had agreed, that "It was likely that Mr James would want treatment up to the point where it became hopeless". But insofar as it is possible to ascertain the patient's wishes and feelings, his beliefs and values or the things which were important to him, it is those which should be taken into account because they are a component in making the choice which is right for him as an individual human being.”
There is a strong but not irrebuttable presumption to favour a course of action which will prolong life: Re J (A minor) (wardship: medical treatment) [1991] Fam 33 at page 46 (a case concerning a child but equally applicable to an adult patient).
In weighing up best interests, where the wishes and feelings of the patient can be ascertained, they must be given proper consideration but are not determinative. The weight to be attributed to wishes and feelings will differ depending on such matters as how frequently they are expressed, how consistent the views are, the complexity of the decision and how close to the borderline of capacity the person is.
In this case I have come to the clear conclusion, having had regard to all the evidence and submissions in the round, that the application should be granted, and the care plans approved, for the following reasons:
MN’s objections to the exploratory investigations are not based on an informed, rational understanding of what is proposed, the benefits and the burdens. His resistance is, instead, infected by delusional beliefs outlined above. This is not a case where there is evidence of his views before loss of capacity. In this case, his personal beliefs and appraisal of what the clinicians are proposing are rooted in long standing paranoia.
There is nothing to suggest that he actively wants his life to end, or, putting it another way, that he would not want the opportunity for the quality of his life to be enhanced, and for the duration of his life to be prolonged. Indeed, he expressed the clear view to the OS’s agent that he does not want to die. Further, his views about undertaking further medical investigation seem to have fluctuated, in that he did not vigorously oppose it when talking to his IMCA or the OS’s agent whereas he is aggressively dismissive to the clinicians.
The evidence is that at mention of the word “cancer” he becomes agitated, so it would clearly be sensible not to use that word to or in front of him when informing him about the intended hospital admission.
The investigations are required to confirm the diagnosis, the stage of the tumour, and whether it has spread. Further, they are necessary to enable an assessment of treatment options to take place and, if treatment is not viable, how palliative care can be implemented.
If the investigations are not carried out, potentially life saving treatment options cannot be considered. If cancer is present, MN would likely experience an increase in pain and discomfort, including itching, pain, bleeding and blockage in the anal canal. It would spread to other areas leading to death.
The testing should provide a definitive diagnosis of whether he has cancer, and enable the team to prepare a treatment plan, which would include pain mitigation. He is currently experiencing physical discomfort and it is desirable to reduce or eliminate the pain if possible.
I regard MN’s situation as urgent given the lengthy delay since anal cancer was first suspected. In my view, the investigative work should be done as soon as possible, although the evidence is that it will require 2 weeks to make all the necessary arrangements which are challenging and multi faceted to coordinate.
General anaesthetic would minimise movement and distress and enable all the tests to be completed in one day. I am satisfied that carrying out the investigations without a general anaesthetic is not a clinically recommended option in this case, and although there are risks involved, they are no greater for MN than any other patient. I was told that the general anaesthetic would last 1 ½ - 3 hours and it is advantageous to carry out all the investigations under the one anaesthetic.
If the diagnosis is confirmed, likely future treatment options are chemotherapy and radiotherapy, potentially followed by surgery which would be major and accompanied by a permanent colostomy bag. Authorisation to take these steps is, properly, not sought by the Trust at this stage which must await the outcome of the testing procedures, and then reconsider capacity and best interests. At this stage, what is sought is investigative only and, in my judgment, a proportionate and appropriate step to take.
I approve the Deprivation of Liberty sought, if and insofar as it is required to enable transportation and the planned investigative medical procedures. It is likely that restraint (physical and/or chemical) will be required. It is, in my judgment, a proportionate and necessary interference with MN’s rights to facilitate the testing to be carried out.
At the request of the parties, I will adjourn to a hearing in September at which the court can consider any supplemental application for authorisation of treatment.